startedinnc

This blog is about a family of two loving parents, two sister schnauzers, a persian, and a very loved young man who faces severe autism daily, sometimes better than others. We will relive the lows, laughs, and joys of our "normal" life. Always under the hand of God.


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A Stranger Pays For a Meal

I want to respond to the story I am sure that you have seen in the media. There was a family who was eating at a restaurant when their son began to have a tantrum, probably due to hunger. He has epilepsy. The waitress came over, told the family that someone had paid their bill, and left a note. The note said,

“God only gives special children to special people.”

I know how that family felt. I have been out with Madison when he is disruptive. Vickie and I try to apologize to everyone nearby but feeling totally helpless. I have also gone into a place to eat hoping for a relaxing meal, just to hear a lot of screaming and noise.

Can I leave the same encouragement in my wake that this stranger left? And I love that it was a stranger, doing a kind act does not have to be a lot of fuss; actually it is better if it isn’t.

Read the story here.

But I do disagree on one count. Madison has given me a lot more than I could ever give him.

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Eating Lunch With My Son

It has been two months since I left my job to stay at home. Vickie and I are starting to joke that I have become Madison’s butler.

We knew something was going on before I started staying home. Madison had become very listless, lost his appetite and refused to go anywhere. Vickie had tried several times to get him in the car to go somewhere and it often would be an hour struggle just to get him in the car.

It was frustrating because we didn’t know what was going on or how to get through. He would get stuck on a single thought and keep repeating it. The trick when this happens is to redirect the child’s attention onto something else. Madison could not be redirected.

In the last few months we have had Madison go through some medical tests. He loves to have his blood checked. This time, though, he fought Vickie and the nurse so they couldn’t get it. We took him back the next morning, and with the help of Stephen, one of Madison’s buddies, we were able to get him in the chair. It is funny how, after he was stuck, he just sat there and watched the blood flow. It was like, oh is this all. He has always been intrigued with watching his blood flow. It doesn’t scare him at all, but getting him in the chair, that is a different story.

The doctor – Madison has four and I can’t keep them straight – said he felt Madison was experiencing depression caused by a reaction to the combination of his medicines. We have cut back on one of his medicines and, slowly, his appetite is returning and he is starting to play with his I-pads again.

I often tell people autism is like a soup. With Madison, it is a mixture of autism, epilepsy and who knows what else. During his depression we taped him having a seizure in church listening to his “one hundred”’ the choir. So a lot of things were going on that he couldn’t tell us.

But today, I got to take him to Arby’s and sit inside while he happily ate his chicken strips. I know he was happy because I saw the big smile on his face. And there was a smile on my face, too.